CHOLANGIOCARCINOMA - A GLOBAL PROBLEM REQUIRING A GLOBAL SOLUTION

World Cholangiocarcinoma Day is an international effort to raise much-needed awareness of cholangiocarcinoma, a devastating cancer that occurs in the bile ducts in or outside the liver. This poorly understood and under researched disease is increasing in incidence globally - we believe collaboration is the way forward.

World Cholangiocarcinoma Day Partners

Working nationally, collaborating internationally
for the world's cholangiocarcinoma patients

AMMF The Cholangiocarcinoma Charity

AMMF - The Cholangiocarcinoma Charity

AMMF is the UK’s only cholangiocarcinoma charity. Working to raise awareness, provide information to those who need it, and to encourage and support research.

www.ammf.org.uk

The Cholangiocarcinoma Foundation

The Cholangiocarcinoma Foundation

The mission of The Cholangiocarcinoma Foundation is to find a cure and improve the quality of life for those affected by cholangiocarcinoma (bile duct cancer).

www.cholangiocarcinoma.org

The Bili Project Foundation - We Bilive in Early Detection

The Bili Project Foundation

The Bili Project Foundation’s mission is to raise awareness, reduce the incidence and improve the outcomes of hepatobiliary cancers by funding research to identify early detection biomarkers and curative treatments.

www.thebiliproject.org

The Target Cancer Foundation

Target Cancer Foundation

TargetCancer is a Cambridge, MA based rare cancer research foundation. Since 2010, TargetCancer Foundation has focused on funding innovative and impactful cholangiocarcinoma research.

www.targetcancerfoundation.org

Cholangiocarcinoma Thailand

Cholangiocarcinoma Foundation of Thailand

Cholangiocarcinoma Foundation of Thailand takes care of lives, families and societies, expands opportunities and raises awareness of the threat of CCA to the community.

www.cca.in.th/en

CASCAP

CASCAP

Cholangiocarcinoma Screening and Care Program (CASCAP) aims to systemically and cooperatively monitor, screen, diagnose and treat patients with or at risk of CCA.

www.cascap.in.th

Liver Fluke and Cholangiocarcinoma Research Centre:

www.lfcrc.kku.ac.th/home

"Fluke-free Thailand is one of the targeted research projects involved in Grand Challenges Thailand that has been planned for its launch in 2016."

National Research Council of Thailand

"This is not one of the cancers that has glossy adverts and famous people suggesting you check yourself for lumps and bumps. So, chances are you won’t have heard of it – unless those of us who do know about it share the information wherever and whenever we can."

Nikki Greenall, Dorset, UK

"World Cholangiocarcinoma Day is important because the number of cases are increasing each year and there is an urgent need to raise awareness about cholangiocarcinoma, fund research to lead to early detection of this cancer and develop more clinical trials - all to one day finding a CURE."

Barbara D, Derry, New Hampshire, USA

" The Bili Project Foundation supports World Cholangiocarcinoma Day to raise awareness of this cancer, remember the loved ones who lost their battle and all those who fight courageously to beat this cancer. Together, we can discover early detection methods and curative treatments.”

"Increasing awareness of cholangiocarcinoma is the first step in helping to fund research to find a cure. Do what you can to help fight rare diseases. Too many families are like ours, wishing their sons and brothers and loved ones had the chance to live lives without this deadly disease."

D. Darsh and Lis Garassino

"Stories of cholangiocarcinoma survivors gave us cause for hope during Derick’s illness and now bring us so much joy. They are proof that, if caught early, this disease CAN be beaten."

Margaret McRobert, Stonehaven, Scotland

"Living 9-10 days or 2-3 months longer is worth it for yourself and family. If you let it be, you will die very soon. You still have a chance to recover or survive if you get the surgical treatment."

Mr.Prasit Nonting, Former cholangiocarcinoma patient

"As a foundation dedicated to funding cholangiocarcinoma research, we are proud to partner with so many great collaborators for World Cholangiocarcinoma Day. It is only through our shared efforts that we will begin to see transformative changes in both awareness and treatment for cholangiocarcinoma."

Jim Palma, Executive Director, TargetCancer Foundation

“Raising awareness of and support for cholangiocarcinoma is an urgent priority – for doctors, for researchers, and most of all, for the rapidly increasing number of people struggling against this deadly cancer. Together we can make a difference!”

Dr. Katie Kelley, UCSF

"The Foundation will participate in educating and distributing accurate information to society to tell them what exactly CCA is."

Dr. Netrachaleo Sanpitak, President of the Cholangiocarcinoma Foundation of Thailand

"There are many cholangiocarcinoma patients who are still in need of help and the Foundation of Thailand has expanded greater opportunities to those patients."

Cholangiocarcinoma Special Ward Nurse

"Those of us whose lives have been touched by cholangiocarcinoma are all part of a family across the world, united by one main objective, to raise the awareness of cholangiocarcinoma so that one day others can be more fortunate than those we have loved and lost."

Claire Bradburn, Stockport, UK

"World Cholangiocarcinoma Day provides an important message. There is hope for those suffering from this insidious cancer. As a patient, I have benefited from, and appreciate, the collaborative efforts on the part of The Bili Project Foundation, The Cholangiocarcinoma Foundation, the doctors and researchers to identify improved treatment options.”

Michael Lax, Diagnosis Cholangiocarcinoma 2014, Cancer-Free 2015

"We are delighted to come up with the effective solution to help the locals but the bigger challenges are still waiting. There are approximately 10,000 individuals estimated to be suffering from CCA every year. We need to raise greater awareness to the community in order to gain better support from both governmental and private sectors at the national and international levels."

Dr.Narong Khuntikeo, Director of Liver Fluke and Cholangiocarcinoma Research Centre, Khon Kaen University

"The elimination of liver fluke for reducing CCA incidence has been considered as the strategic policy of the Ministry of Public Health in 2016."

Prof.Piyasakol Sakolsatayadorn, Thailand Minister of Public Health

"World Cholangiocarcinoma Day is important because cancer has no borders; affected patients live throughout the world and together we will conquer"

Marion S, Novato, California, USA

"AMMF has done a huge amount to promote the awareness of cholangiocarcinoma and to support patients with this cancer, as well as clinicians and researchers fighting it – including Imperial’s own research programme into early biomarkers."

Dr Shahid Khan, Imperial College London

"World Cholangiocarcinoma is important to me because rare disease is not so rare."

Leslie Condon

"Chronic inflammation of the bile duct caused by liver fluke infection is the major risk factor of CCA in Thailand. After more than 30 years of intensive research, we are still hoping to find the way to prevent and find effective treatment for our patients."

Prof. Puangrat Yongvanit, Secretariat of Cholangiocarcinoma Foundation of Thailand

"World Cholangiocarcinoma Day provides an important opportunity to raise awareness worldwide, to encourage international research, and to strengthen the bonds with our partners around the globe. A far better future for those with cholangiocarcinoma can be achieved through collaboration – and together we will make a difference."

Helen Morement, CEO AMMF, UK

"Yes, I was very lucky at the day when the disease was detected. Check up your liver to screen the CCA every year if you are in the risk group. If you are suspected to be CCA, please undergo the surgery. Then, you will be cured."

Ms.Saman Chumtok, Former cholangiocarcinoma patient

"World Cholangiocarcinoma Day is important to me because it brings awareness to a very devastating and rare cancer. It can be very lonesome being diagnosed with this and having people say "never heard of it" or "where is your bile duct." I dyed the front of my hair green to bring awareness. World Cholangiocarcinoma Day is awesome because it brings full awareness!"

Geri Keegan

"World Cholangiocarcinoma Day is important because it provides an opportunity for those diagnosed with this disease to not feel alone in the world, and to bring much needed awareness in the fight for a CURE."

Melinda B. (patient) Billings, Montana, USA

"As the primary user group for cholangiocarcinoma and gall bladder cancer in the UK, AMMF fulfils a central role in supporting patients and families and also has an invaluable advisory role in the national and international research programme in which the UK has led the world."

Professor John Bridgewater, UCL Cancer Institute, London

"Increasing awareness of cholangiocarcinoma is the first step in helping to fund research to find a cure. Do what you can to help fight rare diseases. Too many families are like ours, wishing their sons and brothers and loved ones had the chance to live lives without this deadly disease."

D. Darsh and Lis Garassino

"World Cholangiocarcinoma Day is important because it means our family is not alone. It fosters a unified approach while raising awareness and sharing knowledge, compassion and understanding to those affected by this rare disease."

Kim Balkus