CHOLANGIOCARCINOMA - A GLOBAL PROBLEM REQUIRING A GLOBAL SOLUTION

World Cholangiocarcinoma Day is an international effort to raise much-needed awareness of cholangiocarcinoma, a devastating cancer that occurs in the bile ducts in or outside the liver. This poorly understood and under researched disease is increasing in incidence globally - we believe collaboration is the way forward.

World Cholangiocarcinoma Day Partners

Working nationally, collaborating internationally
for the world's cholangiocarcinoma patients

AMMF The Cholangiocarcinoma Charity

AMMF - The Cholangiocarcinoma Charity

AMMF is the UK’s only cholangiocarcinoma charity. Working to raise awareness, provide information to those who need it, and to encourage and support research.

www.ammf.org.uk

The Cholangiocarcinoma Foundation

The Cholangiocarcinoma Foundation

The mission of The Cholangiocarcinoma Foundation is to find a cure and improve the quality of life for those affected by cholangiocarcinoma (bile duct cancer).

www.cholangiocarcinoma.org

The Bili Project Foundation - We Bilive in Early Detection

The Bili Project Foundation

The Bili Project Foundation’s mission is to raise awareness, reduce the incidence and improve the outcomes of hepatobiliary cancers by funding research to identify early detection biomarkers and curative treatments.

www.thebiliproject.org

The Target Cancer Foundation

Target Cancer Foundation

TargetCancer is a Cambridge, MA based rare cancer research foundation. Since 2010, TargetCancer Foundation has focused on funding innovative and impactful cholangiocarcinoma research.

www.targetcancerfoundation.org

Cholangiocarcinoma Thailand

Cholangiocarcinoma Foundation of Thailand

Cholangiocarcinoma Foundation of Thailand takes care of lives, families and societies, expands opportunities and raises awareness of the threat of CCA to the community.

www.cca.in.th/en

CASCAP

CASCAP

Cholangiocarcinoma Screening and Care Program (CASCAP) aims to systemically and cooperatively monitor, screen, diagnose and treat patients with or at risk of CCA.

www.cascap.in.th

Liver Fluke and Cholangiocarcinoma Research Centre:

www.lfcrc.kku.ac.th/home

"CCA is a rare cancer in throughout the world. However it has a high mortality rate especially in the northeastern area of Thailand. This particular cancer affects not only patients themselves but their families, society, economics as well. Therefore, World Cholangiocarcinoma Day is a day that highlights the important of raising awareness of CCA across the world."

Hasaya (Researcher)

"This is not one of the cancers that has glossy adverts and famous people suggesting you check yourself for lumps and bumps. So, chances are you won’t have heard of it – unless those of us who do know about it share the information wherever and whenever we can."

Nikki Greenall, Dorset, UK

"World Cholangiocarcinoma Day is important because the number of cases are increasing each year and there is an urgent need to raise awareness about cholangiocarcinoma, fund research to lead to early detection of this cancer and develop more clinical trials - all to one day finding a CURE."

Barbara D, Derry, New Hampshire, USA

" The Bili Project Foundation supports World Cholangiocarcinoma Day to raise awareness of this cancer, remember the loved ones who lost their battle and all those who fight courageously to beat this cancer. Together, we can discover early detection methods and curative treatments.”

"Increasing awareness of cholangiocarcinoma is the first step in helping to fund research to find a cure. Do what you can to help fight rare diseases. Too many families are like ours, wishing their sons and brothers and loved ones had the chance to live lives without this deadly disease."

D. Darsh and Lis Garassino

"Stories of cholangiocarcinoma survivors gave us cause for hope during Derick’s illness and now bring us so much joy. They are proof that, if caught early, this disease CAN be beaten."

Margaret McRobert, Stonehaven, Scotland

"World CCA Day important because it encourages people to be concerned about their health and make decisions that avoid CCA. The Take Home Message is, if you have symptoms you suspect to be CCA, don't hesitate to see a doctor and follow their instructions."

Mr. Phaiboon Songsangrit, 15 year survivor of CCA

"As a foundation dedicated to funding cholangiocarcinoma research, we are proud to partner with so many great collaborators for World Cholangiocarcinoma Day. It is only through our shared efforts that we will begin to see transformative changes in both awareness and treatment for cholangiocarcinoma."

Jim Palma, Executive Director, TargetCancer Foundation

“Raising awareness of and support for cholangiocarcinoma is an urgent priority – for doctors, for researchers, and most of all, for the rapidly increasing number of people struggling against this deadly cancer. Together we can make a difference!”

Dr. Katie Kelley, UCSF

"In Thailand up to 20,000 people die each year from CCA, These are mostly middle aged men and woman with children and families that depend on them. The devastation of this disease on people is heartbreaking. When we are working to solve the problems of CCA in a region with the highest incidence worldwide, having an international alliance is crucial. World CCA day is an important part of fighting this cancer and saving lives as a global effort."

David A. Lispi, Cholangiocarcinoma Foundation of Thailand

"World CCA Day is important because the highest mortality rate of CCA is found in Thailand. Therefore, this day is important day as it raises awareness."

Miss JirananTesme, Coordinate Officer of CCA Foundation Thailand

"Those of us whose lives have been touched by cholangiocarcinoma are all part of a family across the world, united by one main objective, to raise the awareness of cholangiocarcinoma so that one day others can be more fortunate than those we have loved and lost."

Claire Bradburn, Stockport, UK

"World Cholangiocarcinoma Day provides an important message. There is hope for those suffering from this insidious cancer. As a patient, I have benefited from, and appreciate, the collaborative efforts on the part of The Bili Project Foundation, The Cholangiocarcinoma Foundation, the doctors and researchers to identify improved treatment options.”

Michael Lax, Diagnosis Cholangiocarcinoma 2014, Cancer-Free 2015

"World CCA Day is important because it reveals the incidence of CCA across the world. It is a day that will encourage people to be concerned about their health and avoid CCA risks, which will lead to a decrease in incidence."

Mrs. Atitaya Namsrithan, Information Recorder, Liver Fluke & CCA Research Center

"In Thailand the CCA mortality rate has historically been high and is still high. CCA is a health problem that everyone should know about and be concerned with. World CCA Day is important because having a global campaign which benefits decreasing the incidence of CCA is a great thing. In Thailand CCA is a disease that can be prevented and raising awareness is the way to start."

Miss Thinabhorn Noachang, Research Assistant, Liver Fluke & CCA Research Center

"World Cholangiocarcinoma Day is important because cancer has no borders; affected patients live throughout the world and together we will conquer"

Marion S, Novato, California, USA

"AMMF has done a huge amount to promote the awareness of cholangiocarcinoma and to support patients with this cancer, as well as clinicians and researchers fighting it – including Imperial’s own research programme into early biomarkers."

Dr Shahid Khan, Imperial College London

"World Cholangiocarcinoma is important to me because rare disease is not so rare."

Leslie Condon

"Every year many people die from cholangiocarcinoma, so World Cholangiocarcinoma Day allows the world to know about the importance of cholangiocarcinoma awareness."

Supranee Warapan, Manager, CASCAP, Thailand

"World Cholangiocarcinoma Day provides an important opportunity to raise awareness worldwide, to encourage international research, and to strengthen the bonds with our partners around the globe. A far better future for those with cholangiocarcinoma can be achieved through collaboration – and together we will make a difference."

Helen Morement, CEO AMMF, UK

"The aggressive and deadly nature of CCA has devastating socioeconomic impact on families, most of whom are already at the median poverty line. WCCAD helps rain awareness that can help people and save lives."

Miss Chonthicha Treened, Thailand

"World Cholangiocarcinoma Day is important to me because it brings awareness to a very devastating and rare cancer. It can be very lonesome being diagnosed with this and having people say "never heard of it" or "where is your bile duct." I dyed the front of my hair green to bring awareness. World Cholangiocarcinoma Day is awesome because it brings full awareness!"

Geri Keegan

"I feel in danger of cholangiocarcinoma and I know I need to be screened before it is too late. WCCAD helps raise awareness of CCA screening in Thailand so others at risk can seek this and protect themselves."

Mr Jirasak J, Muang, Thailand

"World Cholangiocarcinoma Day is important because it provides an opportunity for those diagnosed with this disease to not feel alone in the world, and to bring much needed awareness in the fight for a CURE."

Melinda B. (patient) Billings, Montana, USA

"As the primary user group for cholangiocarcinoma and gall bladder cancer in the UK, AMMF fulfils a central role in supporting patients and families and also has an invaluable advisory role in the national and international research programme in which the UK has led the world."

Professor John Bridgewater, UCL Cancer Institute, London

"World Cholangiocarcinoma Day is important because it means our family is not alone. It fosters a unified approach while raising awareness and sharing knowledge, compassion and understanding to those affected by this rare disease."

Kim Balkus

"20,000 Isan (northeastern Thai) people die each year from cholangiocarcinoma. The World Cholangiocarcinoma Day campaign provides everyone with the resources to understand the disease and in the case of fluke associated CCA, prevent it. We must teach the young generations about CCA and help them understand the ways they can help themselves and their families from falling victim to the disease."

Miss Sipeechiya Loday, Assistant researcher, CASCAP, Thailand